FASD Awareness Day – Standing in Solidarity with FASD Tāngata Whaikaha Māori and Their Whānau 

On this Foetal Alcohol Spectrum Disorder (FASD) Awareness Day, Te Ao Mārama Aotearoa Trust (TAMA) stands in solidarity with all tāngata whaikaha Māori (Māori with lived experience of disability), including those living with FASD, and their whānau. Today, we recognise the significant challenges faced by Māori communities affected by FASD, and we renew our commitment to support their rights and well-being. 

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A Lifelong Impact on Māori Communities 

FASD is a lifelong neurodevelopmental condition caused by prenatal exposure to alcohol. In Aotearoa, the impact of FASD disproportionately affects Māori communities, with estimates suggesting that up to 6.3% of Māori children may live with this condition ​(Massey Research Online)​(Oranga Tamariki). These children often face barriers in education, health, and social services due to misdiagnosis or a lack of proper recognition of FASD as a disability. 

This under-recognition has caused FASD to be excluded from disability support services, leaving many Māori families struggling to access the resources and assistance they need ​(FASD-CAN)​(Awhi Ngā Mātua). Despite the neurological and developmental challenges posed by FASD, it is not currently classified as an eligible condition for disability funding in New Zealand, further exacerbating inequities faced by Māori living with this condition ​(Massey Research Online). 

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The Call for Recognition and Support 

As Māori leaders and advocates, we echo the calls from whānau and healthcare professionals for better recognition of FASD within disability support systems. It is a condition that disproportionately impacts our people, and the lack of support has long-lasting effects on tamariki, rangatahi, and whānau. Without appropriate interventions, children with FASD are more likely to experience challenges such as exclusion from school, mental health issues, and involvement with the justice system ​(Oranga Tamariki)​(NZ Herald). 

At TAMA, we acknowledge the efforts of the Māori FASD Coalition, established to advise the government on how to best provide culturally appropriate support for Māori affected by FASD ​(FASD-CAN). However, more must be done to ensure that FASD is recognized for the disability it is, and that Māori whānau have access to the resources, support, and services they deserve. 

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Standing with Tāngata Whaikaha Māori 

FASD is not just a health issue – it is a matter of equity and social justice. As a uniquely Māori organization, TAMA remains committed to advocating for tāngata whaikaha Māori and their whānau, ensuring their voices are heard at all levels of government and policy design. We support the ongoing efforts to secure recognition of FASD within disability frameworks and to reduce the stigma and misunderstanding surrounding this condition. 

We stand alongside our whānau affected by FASD, reinforcing the need for education, prevention, and early intervention. Let today serve as a reminder of the work that still needs to be done – together, we can drive change, raise awareness, and secure the future for all tāngata whaikaha Māori. 

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Tūmanako – Hope for the Future

As we mark FASD Awareness Day, we hold on to the hope – Tūmanako – that greater awareness and recognition will lead to a brighter future for all affected by FASD in Aotearoa. TAMA will continue to advocate for systemic change that honors the mana of tāngata whaikaha Māori and upholds the principles of Te Tiriti o Waitangi in disability support services. 

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Together, we can build a more inclusive and supportive society for all. 

He waka eke noa – We are all in this together. 

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For more information and resources on FASD, visit FASD-CAN or FASD Awareness Month ​(FASD-CAN)​(FASD Awareness Month - Creating Success).